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"I know the plans I have for you," says the Lord, "plans to give you a hope and a future."

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Sunday, July 31, 2011

Wings As Eagles

It's been a while since I have updated my blog.  Not too many "new" things are happening at the moment.  Nathan will attend his last social group on Tuesday.  He is a little sad about this but he is also excited about starting school in September.  He will have one more OT session with Americ about mid- August.  It's been challenging to take Nathan to so many places and to so many appointments but we remain so grateful that the Lord so easily opened so many doors for Nathan.  We have seen many improvements.

When Nathan first attended his social group his teacher said her biggest concern was that he refused to interact with the other students and was only interested in talking to the adults in the room.  Now, Nathan has made friends and his best friend there is Alex. 

Now, without further delay I am going to tell you what happened at Greenwood Hills these last few days.  I wanted to write about this yesterday but I didn't have access to my computer then. 

We were able to attend the second family camp at Greenwood Hills from Wednesday night through Saturday afternoon.  My parents were there since my dad was one of the speakers.


  There was a little boy named Andrew there with his family.  Andrew is five years old just like Nathan.  He is a precious little boy.  But unlike Nathan, Andrew can not run.  Andrew can not walk.  Andrew can not talk.  He has spinal bifida. 

Below is a picture of Nathan with his friend, Andrew. 

Nathan went up to Andrew and talked to him.  He said, "Mom, Andrew doesn't talk to me."
I told Nathan that Andrew talked to him in other ways.  "When Andrew looks at you it means he is listening to what you are saying.  When Andrew smiles it means he likes what you are saying to him."  That was all it took.  Every day, several times a day, Nathan went right up to Andrew and would talk to him.  He asked questions and showed Andrew where he was missing his two front teeth. 

Nathan sincerely enjoyed spending time with Andrew and his family.  And in these last few days at camp I watched something beautiful unfold between the two of them.  Maybe Andrew could not speak in sentences but he spoke volumes.  I watched on the last day as Andrew's parents finished packing.  They put Andrew in the foyer and every single person who walked by Andrew stopped to tell him hello or say something to him.  And I watched their faces and I saw them smile.  Andrew, dear, precious Andrew, without saying a word was bringing joy to people.

His parents were wonderful.  They always were smiling and always looked happy.  I loved to watch the way Andrew would respond to his mom.  When he got noisy she'd tap his leg and he'd calm right down. 

So I said on facebook that yesterday Nathan was breaking my heart in all the best ways and that he made me cry.  But these were tears of both joy and absolute heartache.  After spending several days with Andrew, Nathan had really become attached to him.  Other children seemed to be nervous and unsure around Andrew but not Nathan. 

Some people might say, "Nathan is broken!  He has Aspergers.  There is something wrong with him!"

I've come to realize it's people like Nathan and Andrew who we should try to be more like.  Don't get me wrong.  Nathan had some challenges at camp.  We had a complete meltdown at the pool and he had a meltdown in the Annex over a basketball game.  It was hard.  But there is a quality that Nathan possesses that few others do.  Nathan hold no prejudice of any sort.  Everyone is his friend.  Everyone is someone to be talked to and socialized with.  It's beautiful really.  Nathan sees past what other's fear. 

And some might angrily cry out, "How could God do that to Andrew?  How could God leave him unable to talk and walk?!" 

Do not miss the beauty of a little boy like Andrew.  Remember how I told you how everyone who walked by him stopped to say hello and they smiled!  Smiled!  Andrew brings joy to people without ever saying a word to them. 

Now to tell you something Nathan said that made me cry when I took my shower that night.  Nathan said, "Mom, I am going to pray every day that God will teach Andrew to walk."    I told Nathan how proud I was of him and how happy Andrew would be to know that he was praying for him.  And later in my solitude I gave into the emotions and I wept hard in the shower.  I prayed for Andrew and his family and I thanked God for my sensitive little boy.  I also asked God to help me have more faith like a child's.  It was an emotional week as well since we have just surpassed the weeks in my pregnancy that we lost baby #3.  And I thanked God for baby #4 who thus far is growing well and doing ok!

Nathan has no doubt that praying for Andrew and asking God to help him walk will do just that.  He has no fears, no misgivings, no doubt at all in God's ability to teach Andrew to walk.  Later when I talked to Chris I said, "What if we all prayed like that?  What if we all started to pray with no doubts in God's ability?  What if we prayed with child like faith?  No science or facts or books to sway our thoughts or make us doubt.  Can you imagine what would happen?"

Maybe boys like Nathan and Andrew are not broken like the world would like to think.  Maybe it's the rest of us who are broken and when we pray and ask for something we begin to doubt even as the words leave our lips. 

Nathan laughed with absolute joy when I told him how one day, no matter what happened here on earth, that in heaven Andrew's body would be perfect.  He would not need his wheelchair and Nathan would see him running down the streets of gold.  Nathan was thrilled.  His response?  "Mom, when I get to heaven I am going to find Mr. Tim (taught the kid's meetings) and Andrew and give them a high five on the street of gold."

"But those who wait on the Lord Shall renew their strength; They shall mount up with wings like eagles, They shall run and not be weary, They shall walk and not faint." Isaiah 40:31

Friday, July 1, 2011

The Good, the Bad, the Ugly...well maybe not ugly...

Let's start with the good.  Chris and I are expecting again!  We saw the heart beating when I was 6 weeks 5 Days.  The baby was very tiny but very much there!  We are excited but also nervous.  The Lord has really spoken to my heart these days, telling me to trust Him in all things, to have faith, and to believe.  No matter what happens, be it good or bad, He is in control! Always!

I have not updated much because I have been very tired....and also pretty sick lately.  But I also have not updated because Chris and I got some news that we are still trying to figure out and wrap our heads around.  After having door after door open wide for us with absolute ease we had a door close in our face just as we were about to step through.  We are literally between a rock and a hard place.  No decision we make is a good one or an easy one.

Basically the TSS and the BSC that Nathan was one step away from getting is now just past that door that slammed closed.  Act 64 was a law put into place to help families, there was a good idea behind it, but it is also hurting many families and we happen to be one of them.  Without going into many details we originally were going to get Nathan's services for free but now they will cost us....a big sum.  So we have no good options basically.  We go forward and pay a large sum or we stand still and Nathan does not get the aid to go to school with him. 

We've been told if Nathan has enough behavioral issues the school will then be forced to give him an aid.  But who knows!

In all this, we DO KNOW that the Lord is in control!  He is holding us in His hands and guiding us along every step of the way.  We are disappointed to say the least, we are unsure which way to go, and so we ask that you pray with us for wisdom and guidance in making the right decision. 

Tuesday, June 21, 2011

Quick Update

Monday's meeting went well.

We are awaiting final approval but it looks like Nathan will get 10 hrs of a TSS.  This person will go to school with him 10 hrs a week.  And 4 hours of a BSC.  This is a Behavioral Specialist Clinician, for the home. 

The last two afternoons Nathan has really lost it and become very upset.  I'm babysitting a 8 yr old girl this summer and it's throwing his schedule off.  We just need to figure it all out.  Step by step!

Please remember to pray for our dear friends Terri Blount and Trey Love.

http://terriblount10.blogspot.com/

http://www.causes.com/causes/124694

Saturday, June 18, 2011

Jeopardy Blues

We are considering banning Jeopardy in our home.

Why?  Is it the content?  No.  Is it our kids picking up bad habits?  No.  It's the fact that when our little Nathan, at five years old, only gets one or two answers right....he gets really angry and upset.  Friday he was so angry and annoyed that Jeopardy dared make the show so hard on Friday night that he could only answer one question.

He went to bed in tears.  Poor guy.

Today I ran a few errands while Chris was home with the kids.  Nathan called me on my cell phone all in tears because he didn't get a turn on a swing when he wanted.  I told him to wait and to share but he just bawled.  Sigh. 
We went to a birthday today for a friend who turned fifty.  They have a son who is nine and he has Autism.  He and Nathan got along great today and Nathan didn't have any tantrums or blow ups.  He did get upset when it was time to go but it didn't last too long.  It was so nice to talk to this boy's mom because she gets it!  She is living it!  It's amazing how similar Nathan and this boy are but also so different.  The spectrum of Autism seems to be both wide and vast.

Tomorrow is father's day!  We are grilling steak and ribs.  yumm

Monday, we begin to watch the neighbor girl while her mom goes to work.  She and Nathan and Emma get along pretty well.  Monday is also a big day because we will go to the psychologist to ask for approval for Nathan's wrap around services.  Nikki will come with us.  I pray this door opens as easily as all the other ones have.

Saturday, June 11, 2011

Inserts!

Nathan is doing great with his new orthotic inserts.  He says they make him run really fast and jump farther.  They said it could take time to get used to them and he might need to wear them like an hour a day but he is doing great.  No complaints.

He seems to be really happy about them and told everyone.

A minor victory but a good victory.

Our van was in the shop for repairs under warranty.  The kids have wireless headphones for the dvd player in the van and both headphones were broken.  Under the warranty they gave us two new pair!  We thought the kids would be thrilled but Nathan had a royal fit.  He had a meltdown and was crying because he wanted his old headphones.  Not new ones.  It's amazing what sets him off.  He doesn't like change!

Thursday, June 9, 2011

Break Time!

I haven't written much lately because #1 My computer is a piece of junk and half the time doesn't work.  It took me 20 minutes just to get to this point of writing this!  #2 There isn't too much to say right now.

Nathan's last day at his Thursday social group was today.  He is moving to Tuesdays and that starts up again in July.  I have to admit it will be nice to have a bit of a break.  It's tiring to make that trek out to Norristown every week.  The same goes for his OT and PT.  There will be a break.

The 20th of this month Nikki and I will meet the psychologist to try and get approval for wrap around services. 

With school fast approaching it's essential we get these services in place ASAP.

On other news my poor vegetable garden is withering and struggling in the heat.  My peas have all but died. 

Nathan has his last PT tomorrow until July.  He will get his orthotics put in tomorrow as well.  It will be interesting what he thinks to wearing them.

Thursday, June 2, 2011

Good News

Miss Nikki, who is doing Nathan's FBA, came out this Tuesday to talk with me and observe Nathan playing with the neighbor.

Last week she had observed him at his social group.  Nikki said Nathan and another boy named Alex have developed quite the friendship.  I knew this.  She also said Nathan would incessantly  talk even when he was not supposed to.  She also observed him rubbing Alex's head and when I asked if Alex cared she said, "No.  Alex seemed to like it."  Ha ha

Nathan is desperate to have a play date with Alex so I gave his mom my e-mail today. 

Nikki also said Nathan shouted and overacted several times during class. 

So Nikki said after observing Nathan at home, in his class, and at home some more she is going to recommend him for wrap around services.  THIS IS A GOOD THING!  He will be recommended for a BS and a TSS.  A BS is a Behavioral Specialist who will outline a plan and work with us here in the home.  A TSS is a Therapeutic Staff Support.  This person will go to school with Nathan for a few hours a day during the week.  This is the BEST part! 

The TSS will be at school to step in if Nathan gets upset or overreacts and will immediately work on teaching a coping skill.  They can help in a playground or lunch scenario; places where the noise and crowds could very possibly overwhelm Nathan.

The next step is seeing a psychologist, AGAIN, to get the approval of the services recommended by Nikki.  Nikki will be with me when we see the psychologist and be able to give her input.

We thank the Lord as He opens these doors so easily for us.  We have not had any problems with getting what Nathan needs.  While other families are struggling to get services we have had every door open wide for us and we see the Lord's hand in this. 

We do ask for prayer as we consider moving Nathan to a Tuesday social group.  His friend Alex is going to the Tuesday group and Nathan would like to stay with Alex.  But this means leaving his other friends. 

We have one week to decide. 

And please continue to pray for our dear friends, the Blounts.    I am inserting a link.
http://terriblount10.blogspot.com/

Also please pray for Trey Love. 
http://www.causes.com/causes/124694

Thanks!